Imagine your active mind being trapped in a motionless body. One by one, you lose the ability to walk, talk, swallow... and to hug.

This reality is faced by approximately 1,400 Australians who are currently living with motor neurone disease (MND). The disease 'switches off' the nerves which normally signal our muscles to move, leaving a person paralysed but fully alert. The cause of the disease is unknown and there is no cure.

MND Week runs from 6-12 May and MND Australia is highlighting the active minds of people living with MND. Like Duncan Bayly, aged 34. "One of the hardest parts about this disease is how insidious it is. Your brain remains completely active and you have all your faculties but your body just wastes away."